OUR PARTNERS
Providing resources and support that help strengthen families and ultimately enhance the quality of life for those impacted by XP.
Providing resources and support that help strengthen families and ultimately enhance the quality of life for those impacted by XP.
Providing resources and support that help strengthen families and ultimately enhance the quality of life for those impacted by XP.
XPFSG extends our sincere gratitude to our community of partners for their generous support. Not only do they make financial contributions to help us carry out our mission, but also give their invaluable time and expertise. They play a vital role in helping us deliver the critical support to XP families in need throughout the world.
$25 provides UV protective gloves for an XP patient
$150 provides a UV light meter for an XP family
$250 provides a Welcome Care Kit for a newly diagnosed XP family (provides essential items including a UV meter and UV protective hood)
$500 sponsors an XP child to attend our biannual Kids Camp
$1000 sponsors an XP family to cover travel expenses for our biannual Medical Conference and Kids Camp.
Skin and Hand Protection Gloves
A wish experience can be a game-changer for a child with a critical illness
M Health Fairview Masonic Children’s Hospital
M Health Fairview Pediatric Specialty Clinic.
This Minnesota family has shared its family BBQ sauce recipe and is donating all proceeds to the XP Family Support Group! Please try this delicious sauce and support a great cause!