CHARITY & FUNDRAISER
We are committed to helping people and families that rare living with XP. We cannot do this without your help. Our reach and impact is only limited by the funds we raise. Help us break through this limitation!
CHARITY & FUNDRAISER
CHARITY & FUNDRAISER
We are committed to helping people and families that rare living with XP. We cannot do this without your help. Our reach and impact is only limited by the funds we raise. Help us break through this limitation!
We believe that no family should have to deal with their XP diagnosis alone. We aim to help to foster understanding, resilience, and hope when navigating the challenges associated with this rare genetic condition. Help us live out our purpose.
Why help raise funds for XPFSG?
$25 raised could provide UV protective gloves for an XP patient
$150 raised could provide a UV light meter for an XP family
$250 raised could provide a Welcome Care Kit for a newly diagnosed XP family (provides essential items including a UV meter and UV protective hood)
$500 raised could provide a sponsorship for an XP child to attend our biannual Kids Camp
$1000 raised could provide a sponsorship for an XP family to cover travel expenses for our biannual Medical Conference and Kids Camp.
CURRENT FUNDRAISING AND CHARITY EVENTS
Check out Grandpa’s BBQ shop!
This Minnesota family has shared its family BBQ sauce recipe and is donating all proceeds to the XP Family Support Group! Please try this delicious sauce and support a great cause!
The XP Family Support Group has sent out newsletters over the few years since our beginning. They are meant to help inform the families who live with XP, their supporters, and the many people out there who would like to know more about XP.
To request to be on our mailing list for future newsletters and to stay informed of upcoming fundraising and charity events, contact Newsletter@xpfamilysupport.org.
