ABOUT US
We believe that no family should have to deal with their XP diagnosis alone. We aim to help foster understanding, resilience, and hope when navigating the challenges associated with this rare genetic condition.
ABOUT US
We are committed to helping people with the rare genetic disorder called Xeroderma Pigmentosum (XP). People with this condition cannot tolerate the ultraviolet radiation in sunlight and non-LED light sources. Less then a few minutes of sun can cause irreversible cell damage that inevitably turns to cancer.
We are committed to helping people with the rare genetic disorder called Xeroderma Pigmentosum (XP). People with this condition cannot tolerate the ultraviolet radiation in sunlight and non-LED light sources. Less then a few minutes of sun can cause irreversible cell damage that inevitably turns to cancer.
OUR MISSION
To promote awareness, advocate for improved access to care and research, and ultimately enhance the quality for those impacted by XP through the empowering and connecting XP patients, families, caregivers, and communities.
VISION STATEMENT
“Empowering Hope, Illuminating Lives: Envisioning a Future of Unity and Support for Xeroderma Pigmentosum Families.”
VISION STATEMENT
“Empowering Hope, Illuminating Lives: Envisioning a Future of Unity and Support for Xeroderma Pigmentosum Families.”
We’re changing the lives of XP Patients and their Families
120
XP Patients in US
10
XP Medical Conferences
held since the inception
6
XP International
Collaboration Partners
Supporting XP Patients and Families Since 2004
After recognizing a need to support patients and their families when a person is diagnosed with XP, the XPFSG was formed in 2004. That was the beginning of our role as a unique charity dedicated to supporting families who have loved ones that are diagnosed with this rare genetic disorder. Our services help support the needs of XP families in the United States and globally through our international XP partner organizations – all along their XP journey – so they can focus on their health and well-being.
When you get involved, families directly benefit!
We believe that no family should have to deal with their XP diagnosis alone. With your generosity, we can continue to help expand the reach and ensure even more families are supported. Together, we can truely impact the lives of many. Join us!
When you get involved, families directly benefit!
We believe that no family should have to deal with their XP diagnosis alone. With your generosity, we can continue to help expand the reach and ensure even more families are supported. Together, we can truely impact the lives of many. Join us!
